黑料网

What We Do

Under the leadership of Dr. Muenzer, 黑料网 has moved to the forefront of MPS discovery through more than two decades of clinical trial work and research. Dr. Muenzer鈥檚 career has included the creation of a mouse model – an invaluable research tool – for MPS II and the publication of more than 50 articles relating to the MPS disorders.

The Muenzer MPS Research and Treatment Center builds upon that existing work in several important ways:

• Expansion of the 黑料网 MPS basic science and translational research efforts through recruitment of new faculty members with support for their early years, prioritize junior faculty and encouraging MPS related research careers.
• Development of funding for PhD students researching MPS, ensuring that our best and brightest in the next generation of researchers are supported;
• Enhancement of educational opportunities across the 黑料网, creating learning opportunities for 黑料网 residents and fellows, medical students, and genetic counseling students.

Resources

This with a step-by-step guide to walk families through the process of joining and participating in a clinical trial from start to finish. One of the key aims of this guide is to help families advocate for themselves and their loved ones throughout the process. It is not MPS specific but may provide useful information.

The has developed a free educational series to help teach patients and families about the steps involved in developing a new drug treatment, particularly for rare diseases. The goal of this educational series is to provide families with the knowledge to empower them to effectively engage with and contribute to the drug development process.