{"id":2826,"date":"2008-03-10T17:05:00","date_gmt":"2008-03-10T21:05:00","guid":{"rendered":"https:\/\/www.med.unc.edu\/neurology\/divisions\/neurofibromitosis-and-neurocutaneous-disorders\/"},"modified":"2024-06-26T11:12:25","modified_gmt":"2024-06-26T15:12:25","slug":"neurofibromitosis-and-neurocutaneous-disorders","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/neurology\/divisions\/child-neurology-1\/neurofibromitosis-and-neurocutaneous-disorders\/","title":{"rendered":"Neurocutaneous Disorders"},"content":{"rendered":"

Neurofibromatosis Program at ºÚÁÏÍø Health<\/h2>\n

ºÚÁÏÍø Health has a Children\u2019s Tumor Foundation credited neurofibromatosis (NF) program. Most of our patients have NF1, but our providers also see NF2 patients. The clinic is located at ºÚÁÏÍø Hospitals in Chapel Hill and provides services to individuals throughout North Carolina and surrounding states.<\/p>\n

Faculty participate in the NF Children\u2019s Tumor Foundation meetings and participate in the Shine a Light NF Walk each year. The NF program at ºÚÁÏÍø Health was formed by Dr. R. Greenwood, and is currently co-run by Dr. Eric Creed and\u00a0Dr. Soma Sengupta<\/a>. Dr. Sengupta (adult) and Dr. Kram (pediatric) are both neuro-oncology clinical trialists, and both have run clinical trials for NF patients.<\/p>\n

ºÚÁÏÍø Health has a long history of research, care, and treatment of neurofibromatosis patients. The ºÚÁÏÍø Neurofibromatosis Clinic opened nearly 50 years ago, and ºÚÁÏÍø researchers were the first to develop genetic testing for NF1.<\/p>\n

\n

For more information: Neurofibromatosis and Schwannomatosis<\/a><\/p>\n<\/div>\n

\n

Tuberous Sclerosis Complex<\/h2>\n

The Tuberous Sclerosis Complex (TSC) Clinic at ºÚÁÏÍø provides comprehensive care to individuals with TSC across their lifespans. ºÚÁÏÍø has been officially designated as a TSC Clinic by the TSC Alliance due to its excellence in clinical care and participation in TSC research.<\/p>\n

For more information: Tuberous Sclerosis Complex<\/a><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Neurofibromatosis Program at ºÚÁÏÍø Health ºÚÁÏÍø Health has a Children\u2019s Tumor Foundation credited neurofibromatosis (NF) program. Most of our patients have NF1, but our providers also see NF2 patients. The clinic is located at ºÚÁÏÍø Hospitals in Chapel Hill and provides services to individuals throughout North Carolina and surrounding states. 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