Autism Genomics Research: Parents鈥� Views on Genetic Results and Autistic Representation Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families participating in such studies also report variation, both in their expectations for the research and the impact its …
The University of North Carolina (黑料网) Center for Genomics and Society (CGS) and the Center for Bioethics (C:B), together with the Program for Precision Medicine in Health Care (PPMH), announce a joint postdoctoral position in clinical ethics and the ethical, legal, and social implications (ELSI) of precision medicine. This two-year fellowship will begin in September …
Ensuring Equitable Use of New Genetic Technologies: Lessons from Eugenics — New genetic technologies have incrementally but steadily altered the landscape of human reproduction. These technologies include polygenic risk scores coupled with embryo selection, fetal testing using DNA sequencing or non-invasive prenatal testing, and reproductive carrier screening. However, the broad use of and access to …
New ACMG Guidance on Carrier Screening: More or Less Equitable? Next-generation sequencing capabilities have enhanced general population carrier screening by expanding the number of genes and variants on carrier screening panels. Professional recommendations are shifting towards universal screening, that is: screening that is not limited to populations by race or ethnicity and more inclusive of …
Virtual Workshop January 11 鈥� 12, 2022 This jointly supported聽NIEHS/NHGRI聽virtual workshop is meant to explore ethical, legal, and social implications (ELSI) in research endeavors related to gene-environment interaction (GxE) and genetic susceptibility to environmental exposures.聽As funding for more biomedical and behavioral research to explore those interactions increases, potentially novel ELSI issues are rapidly emerging. The …
Request for Abstracts聽 The 5th ELSI Congress ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 –聽Columbia University, New York, NY Research on the ethical, legal, and social implications聽(ELSI) of genetics research and its translation aims to anticipate and illuminate emerging issues relevant to policy and practice and fundamental questions of what it …
Tuesday, Oct. 26, 4:00p – 5:00p Nobel Laureate Jennifer Doudna, PhD CRISPR: Rewriting DNA and the Future of Humanity. Click here to register – https://duke.qualtrics.com/jfe/form/SV_bEKXMF9CZMokVcq
Realizing the Full Potential of Health for All Through Genomics and Precision Health: A discussion with the National Academies Genomics Roundtable Oct 20, 2021 07:00 PM Eastern Time (US and Canada) — On Wednesday,聽October 20, 2021, the Roundtable on Genomics and Precision Health聽will host a virtual open house from 7:00 PM聽– 8:00 PM ET as …
ELSIconversations is a series of聽networking events on ELSI research.聽Each series will bring something new to the conversation, be it a series on research methods, latest developments in a particular field, trainee聽presentations, or any topic suggested by our community of ELSI researchers and those with an interest in ELSI research. Series 1 – Winter/Spring 2021 –聽聽focused聽on …
Following a break in August 2021, the 2nd ELSI Friday Forum聽series will begin in September. September 10, 2021 – Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification 鈥� 聽details coming soon Amy Mundorff, PhD Jay Aronson, PhD Moderated by Jennifer Wagner, JD, PhD.
