Polygenic Risk Prediction in Diverse Populations and Contexts: Scientific and Ethical Considerations —– The differential performance of polygenic risk scores (PRS) by population genetic background is a well-known scientific concern and one of the most important barriers to their equitable translation for clinical use. Not only must the social repercussions of how people are grouped …
Since its creation in 1990, the Ethical, Legal and Social Implications (ELSI) Research Program has funded hundreds of research projects, conferences, and other activities-through grants and contracts. This has resulted in many peer reviewed journal articles, books, newsletters, websites, television and radio programs and educational materials. Many of these products are included in this database …
The first seminar in the Carolina Seminar Series: 鈥淪cience meets society at the intersection between precision medicine and justice, equity, and inclusion.鈥濃�� Empowering trust: Insights from Community Engagement Initiatives Community engagement continues to be a critical component in genomic medicine and precision health research where the overall goal is to improve health outcomes of communities. …
Join us on December 8, 2023 12:00 PM聽for the next ELSI Friday Forum: Affirming Sex and Gender Diversity in Genetics Practices, Policies, and Law: A Call to Action Join panelists: Kimberly Zayhowski, MS, CGC, and Kellan Baker, PhD, MPH, MA.聽Moderated by Mildred Cho, PhD. There are already many barriers to appropriate health care for transgender, …
November 10, 2023 – The Genomics of PTSD Risk: Scientific and Ethical Perspectives Watch the recording here Post-traumatic stress disorder (PTSD) can develop following a traumatic event such as natural disaster, sexual or physical assault, or war. Not all people exposed to the same trauma will develop PTSD鈥攔ates differ based on the nature of the …
A workshop sponsored by the 黑料网 Center for Genomics and Society, Center for Bioethics, and Program for Precision Medicine in Health Care. For graduate students, postdocs, faculty, and clinicians who are interested in research, regulations and policies regarding the development and integration of neural platforms into translational science, and health care. Monday, October 2 – …
Fair Access and Equity of Individualized Interventions for Ultrarare Genetic Conditions —– Since application of the first individualized therapy in 2019, development of these bespoke treatments has expanded rapidly. Individualized therapies鈥攊ncluding directly administered vectored gene therapy, genetically modified cellular therapies, and antisense oligonucleotides, among others鈥攔efer to products designed to treat one to a few individuals …
Population Descriptors in Genomic Research: Applying the NASEM Recommendations —– History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the NIH commissioned a NASEM study on the Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research to determine if and …
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era —– Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision鈥檚 removal of federal constitutional protection for private reproductive decision-making. This panel will discuss two emerging issues for genetic information after Dobbs: prenatal gene therapy and law …
The Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research Thursday, April 20, 1:00pm – 2:30pm Bondurant G100 Please click here for more information.
